Saturday September 8th

Shawna is still at home and she has made it very clear that is where she wants to be as long as she has full support for medication administration (all subcutaneous) and general care.  Home care only provides 72 hours of RN care the whole time she is at home, so we are using those hours wisely.  Christine flew in last night and her parents arrive today.  Between Sharon, Christine, myself and her parents, we'll provide her around the clock care for now.  A few very special people have also offered to help, and they will be added to the rotation as we sort things out.  All of this will hopefully be arranged and finalized soon.

I had the night shift last night, and she was relatively comfortable.  She had breakthrough morphine and gravol this morning, but otherwise her scheduled meds kept things under control.  The RN coordinator is there now, sorting out some additional meds and making sure we have what we need.  Christine is there today and Sharon will take the night shift.

Will is scheduled for surgery for his bone flap on Monday and prayerfully all will go well and he'll be discharged home Tuesday.  If Shawna should deteriorate quickly, the surgery can be changed last minute.  Shawna's brother Derek, flew in yesterday from Ontario and has been able to have some quality time with her.

Yesterday a Hospice Calgary counsellor spent the morning with Will and Shawna to make a plan and offer support as they prepared to talk to Alexis.  That conversation was had yesterday after school.  Alexis is doing as well as can be expected.  We had a snuggle on the couch and played a bit of Wii before breakfast.  What an amazing little girl.

They continue to ask that people do not phone the house or text Shawna's cell phone.  The phone continues to ring quite a bit during the day and they would like to minimize noise and disturbance as much as possible.  If you like, post questions on the blog and I will check the posts regularly and someone will respond/answer as soon as we can.

Terri